Tag: journey

FPIES and A/SERT at Three

FPIES and A/SERT at Three

I wanted to wait to write an update until we had news. Not just news, but good news. Maybe it’s just that I thought if I didn’t write it, things could change improve. We had hope for an alternative approach, A/SERT, through a chiropractor to maybe give 

A Pediatric Thyroid Nodule?!

A Pediatric Thyroid Nodule?!

Does the definition of insanity apply to medical issues? OR is it the medical issues that cause the insanity? We are yet again doing the same thing and hoping for different results with Ellie, and it is NOT easy – hence the insanity. But this 

Plantain, Salmon, and Coconut Water FPIES trial

Plantain, Salmon, and Coconut Water FPIES trial

Have you ever flipped to the end of the chapter or even the book to know the ending? Or read spoilers about a movie or TV show before watching? I will admit that I have been there done that, I HAD to know before going 

Ellie’s Millet FPIES Food Trial Results

Ellie’s Millet FPIES Food Trial Results

I have been in disbelief this past month. How is it possible that not long ago I was wondering if Ellie would ever have even one confirmed safe food? I was happy about blueberries – absolutely! But then came Ellie’s millet FPIES food trial. Oh, how I 

FPIES Blueberry Food Options

FPIES Blueberry Food Options

No one wants to eat one flavor and one texture all day every day. We want and NEED variety in our food to make eating an enjoyable experience instead of a mundane task. Well, I have found the same is true with kids. I saw 

Importance of a Parent Advocate

Importance of a Parent Advocate

I am holding my breath as I write this – I can’t quite believe it myself. However, I think I might actually be able to say we are indeed making progress again. We are walking by baby steps and a glacier just passed us in 

Ellie’s Gut Rest and Allergies

Ellie’s Gut Rest and Allergies

Ellie is currently in a period of gut rest – again – and having to take a break from her treasured blueberries. This is heartbreaking for everyone. Gut Rest – Again I know I have mentioned gut rest for FPIES before several times. Also, how 

Ellie’s One Step Forward, Two Steps Back

Ellie’s One Step Forward, Two Steps Back

It’s been one of those days – that has lasted over a month. We have been living the ‘one step forward, two steps back’ life with Ellie. Through these setbacks though, at least there were a couple wins. I’m going to hold on to those 

Ellie’s FPIES safe foods update: cauliflower

Ellie’s FPIES safe foods update: cauliflower

  Cauliflower and blueberries. Look at that variety folks! Ellie can eat TWO things! TWO FPIES safe foods! We are back to having options in flavors. Turns out she doesn’t approve as much of cauliflower as she does blueberry. She does, however, love the little 

Ellie’s Blueberry Trial FPIES Results

Ellie’s Blueberry Trial FPIES Results

  This is it. I’m going to do it. I am going to confirm that yes, blueberries are an FPIES safe food for Ellie. She has a safe food again! Halleluiah!   One Blueberry trial step forward Such an incredible amount of relief in knowing