Tag: FPIES

FPIES and A/SERT at Three

FPIES and A/SERT at Three

I wanted to wait to write an update until we had news. Not just news, but good news. Maybe it’s just that I thought if I didn’t write it, things could change improve. We had hope for an alternative approach, A/SERT, through a chiropractor to maybe give 

A Pediatric Thyroid Nodule?!

A Pediatric Thyroid Nodule?!

Does the definition of insanity apply to medical issues? OR is it the medical issues that cause the insanity? We are yet again doing the same thing and hoping for different results with Ellie, and it is NOT easy – hence the insanity. But this 

Roasted Blueberries – Best Kept Secret!

Roasted Blueberries – Best Kept Secret!

I can appreciate the masterpieces that can be created from a recipe with multiple steps. However, give me the easiest recipe with only one ingredient AND it is incredible – you had better believe I will make that little beauty pronto! This recipe I stumbled 

Plantain, Salmon, and Coconut Water FPIES trial

Plantain, Salmon, and Coconut Water FPIES trial

Have you ever flipped to the end of the chapter or even the book to know the ending? Or read spoilers about a movie or TV show before watching? I will admit that I have been there done that, I HAD to know before going 

Millet Crackers – Easy and Delicious FPIES Snack

Millet Crackers – Easy and Delicious FPIES Snack

Crackers are one of the best snack foods. They are delicious on their own AND they are delicious as a delivery vehicle for tasty dips, spreads, or cheeses. The world is yummier for having crackers in it, end of story. These Millet Crackers are no 

Ellie’s Millet FPIES Food Trial Results

Ellie’s Millet FPIES Food Trial Results

I have been in disbelief this past month. How is it possible that not long ago I was wondering if Ellie would ever have even one confirmed safe food? I was happy about blueberries – absolutely! But then came Ellie’s millet FPIES food trial. Oh, how I 

FPIES Blueberry Food Options

FPIES Blueberry Food Options

No one wants to eat one flavor and one texture all day every day. We want and NEED variety in our food to make eating an enjoyable experience instead of a mundane task. Well, I have found the same is true with kids. I saw 

Importance of a Parent Advocate

Importance of a Parent Advocate

I am holding my breath as I write this – I can’t quite believe it myself. However, I think I might actually be able to say we are indeed making progress again. We are walking by baby steps and a glacier just passed us in 

Ellie’s Gut Rest and Allergies

Ellie’s Gut Rest and Allergies

Ellie is currently in a period of gut rest – again – and having to take a break from her treasured blueberries. This is heartbreaking for everyone. Gut Rest – Again I know I have mentioned gut rest for FPIES before several times. Also, how 

Ellie’s One Step Forward, Two Steps Back

Ellie’s One Step Forward, Two Steps Back

It’s been one of those days – that has lasted over a month. We have been living the ‘one step forward, two steps back’ life with Ellie. Through these setbacks though, at least there were a couple wins. I’m going to hold on to those