Baking and FPIES
Ellie is FOUR! Do you know how I know? Please ask me how I know. I know, because I baked Ellie a birthday cake!!!!! Let me just say that again. I baked this amazing and hilarious four-year-old girl her first ever birthday cake! Thanks to …
We are back! Well, we have been back for a few weeks now, but I am finally getting around to telling you all about our trip to Children’s Hospital Colorado. It was unexpected to say the least, but also completely predictable in our storyline. …
The number of times I have sat down to write this update and then just stared at the blank page is almost laughable. What I thought was going to be a simple update of knowing a date for Denver has been packed full of another …
Hey there, it’s been a few minutes, days, weeks, okay months, since I have posted anything here. It isn’t that there isn’t anything going on, or that Ellie has miraculously left her GI oddities in the dust – I wish! I’ll give you all of …
I wanted to wait to write an update until we had news. Not just news, but good news. Maybe it’s just that I thought if I didn’t write it, things could change improve. We had hope for an alternative approach, A/SERT, through a chiropractor to maybe give …
Does the definition of insanity apply to medical issues? OR is it the medical issues that cause the insanity? We are yet again doing the same thing and hoping for different results with Ellie, and it is NOT easy – hence the insanity. But this …
Have you ever flipped to the end of the chapter or even the book to know the ending? Or read spoilers about a movie or TV show before watching? I will admit that I have been there done that, I HAD to know before going …
I have been in disbelief this past month. How is it possible that not long ago I was wondering if Ellie would ever have even one confirmed safe food? I was happy about blueberries – absolutely! But then came Ellie’s millet FPIES food trial. Oh, how I …
I am holding my breath as I write this – I can’t quite believe it myself. However, I think I might actually be able to say we are indeed making progress again. We are walking by baby steps and a glacier just passed us in …
Ellie is currently in a period of gut rest – again – and having to take a break from her treasured blueberries. This is heartbreaking for everyone. Gut Rest – Again I know I have mentioned gut rest for FPIES before several times. Also, how …
